Module 6

Data, data, data

DATE: 25 February 2021 (16:00-18:00 GMT)

This course module will cover the following topics and provide participants with some additional further reading and information sources to look at, both before and after the session.

  • Ethics: How can you create value from data?
  • Data belongs to individuals – why does that matter?
  • What are the legal issues of creating, curating, storing, and accessing data?
  • Finding the data you need – build your own vs partnering.
  • Determine and articulate your approach to the data within your idea.

Charlotte Guzzo, Sano Genetics, COO

Charlotte has a background in business and originally worked as a risk analyst in an investment bank.

After a career change, she graduated in neuroscience from the University of Cambridge and started a PhD in genomics at the Sanger Institute, looking at the origins of childhood cancer. Her experience with research convinced her of the importance of personalising treatment to each individual and made her aware of the barriers in achieving this.

She co-founded Sano in 2017 with the aim of accelerating the pace of precision medicine research. Sano provides rapid, ethical recruitment and data sourcing for precision medicine studies by matching patients with relevant research projects.  The platform has reached millions of patients through its extensive partner network and focuses on personalising the patient journey to make participating in research insightful, relevant, and personal.

Patrick Short, CEO, Sano Genetics
Patrick Short, Sano Genetics, CEO

Patrick has been the co-founder and CEO of Sano Genetics since 2018. Sano aims to accelerate the pace of personalised medicine research by delivering a consumer-grade experience for research participants that is personalised and private by design, and by helping researchers conduct their studies 10x faster and lower cost. Prior to founding Sano, Patrick was a researcher at the Wellcome Sanger Institute where his work focused on understanding the role of the non-coding genome in rare diseases through whole exome and whole genome analysis.

Sarion Bowers, Wellcome Sanger Institute
Sarion Bowers, Head of Policy, Wellcome Sanger Institute

Sarion Bowers is the Head of Policy at the Wellcome Sanger Institute. She works primarily on UK science policy, with a particular focus on genomics and genomic technologies. She has a particular interest in data protection and the ethical, legal and societal issues that arise from the use of genomics, including genome editing.